Ending Alzheimer’s Starts With You

February 7, 2012

We thank David Goldberg for sharing this blog.  A recent University of Virginia graduate, David began a campus organization called “Hoos for Memory” which raises awareness of Alzheimer’s disease. 

Imagine it’s the year 2030.  Your parents are two of the 7.7 million Americans who have Alzheimer’s disease.1 You have two kids to take care of and a demanding job.  You want to take care of your parents, but cannot physically be there all the time to make sure they’re okay.  You see your parents savings rapidly disappear. You are emotionally drained as you watch your parents slowly lose the ability to do everything. What can you do?  What could you have done differently?

Luckily, it is not 2030, but 2012.  I’m writing this article because I think it’s time that we as a nation step up to the plate and tackle this problem head on.  Yes, I think it’s fantastic that the National Alzheimer’s Project Act (NAPA) passed in January 2011.  According to the Alzheimer’s Association, “The National Alzheimer’s Project Act requires creation of a national strategic plan to address the rapidly escalating Alzheimer’s disease crisis and will coordinate Alzheimer’s disease efforts across the federal government.”2 NAPA was a start, but we need to pass legislation that will actually accomplish goals and not just state them. Congress needs to follow through and pass Alzheimer’s legislation that is on the table: the HOPE Act and the Alzheimer’s Breakthrough Act.  These two acts provide legislation that will implement the goals set in the NAPA Act.   It’s an election year, and many people don’t think much legislation will be passed this year.  This is my message to Congress: prove me wrong and pass this legislation to start the path to End Alzheimer’s.

Congress, if we hold off investing for a cure or a way to slow the progression of the disease today, we will be paying for it later.  According to the Alzheimer’s Association: “Over the next 40 years, caring for individuals with Alzheimer’s will cost American society $20 trillion –including $15 trillion to Medicare and Medicaid.”3  With a health care system that already has its problems, Alzheimer’s disease will only escalate them.

As a nation, we can’t afford to continue with the status quo in dealing with Alzheimer’s.  And frankly, the members of Congress are in an age group that should be very concerned about Alzheimer’s.  According to the Congressional Research Service, in the 112th Congress the average age of a U.S. Senator is 62.2 years old and the average age of a U.S. Representative is 56.7 years old.4  It’s sobering to think about, but it’s an honest reality that our lawmakers should consider.

Finally, I want to reach out to my generation.  I’m 22 years old, and know firsthand the effects of Alzheimer’s, as my grandfather had the disease.  I also know that I’m in the generation that many older Americans say are “the screwed generation.”  We’re the generation that is going to have to pay the piper from the federal deficit.  We’re the generation that won’t get Social Security and other benefits that older Americans receive today.  Does that mean we’re supposed to just accept every problem and not try to improve things?  No, we can do our part and try to help the best way we can.

It always helps to have a celebrity who supports a cause that needs attention.  Seth Rogen and his wife, Lauren Miller, recently held an event called “Hilarity For Charity” to raise money and awareness among the younger generation about Alzheimer’s Disease.  To quote Seth, “Hilarity for Charity started as a message to my generation that it’s time to step up and realize that Alzheimer’s is not just an ‘old person disease,’ but something that will greatly affect all of us.”5  Seth and Lauren are actively involved in raising awareness and fundraising for Alzheimer’s, as Lauren’s mother was diagnosed with Alzheimer’s at the age of 55 years old.  They raised hundreds of thousands of dollars for their event, and are a great example of how the younger generation can make a difference.

Where does that leave us?  Of course we don’t have the same outreach of a Hollywood star, but we can do plenty.  We can be a voice.  Please go to this website, and take 5 minutes to write your Congressmen and ask them to help pass legislation that can help end Alzheimer’s: http://www.alzimpact.org/Legislative-Action-Center.  You can also take 30 seconds to fill out a form that will go to Barack Obama to ask him to include Alzheimer’s in his budget this year: http://www.alz.org/petition/.  It may not feel like much, but it truly will make a difference.

1 “2011 Alzheimer’s Disease Facts and Figures.” http://www.alz.org/downloads/Facts_Figures_2011.pdf

2 “The National Alzheimer’s Project Act (NAPA).” http://www.kintera.org/site/pp.asp?c=mmKXLbP8E&b=5829219

3 “Alzheimer’s Breakthrough Act.” http://www.kintera.org/site/pp.asp?c=mmKXLbP8E&b=6550687.

4 Manning, Jennifer E. “Membership of the 112th Congress: A Profile.”
http://www.senate.gov/reference/resources/pdf/R41647.pdf.

5 http://www.crowdrise.com/hilarityforcharity

6 Comments

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6 Responses to “Ending Alzheimer’s Starts With You”

  1. Mark Edelstein says:

    In a time when the stresses of early adulthood and the transition between college and real life seem to dominate all, it is easy to become tunnel visioned on our own selfish goals and pursuits. It is inspiring to see a young person like David Goldberg, who at 22, is so vehemently pushing to make Alzheimer’s a focus of conversation and a cause of immediate action. The work being done through research labs and clinical trials throughout this country and the rest of the world is truly exciting, but this issue will not receive the full attention it deserves without the tangible support of our legislature and unyielding commitment of this nation’s citizens to tackling this issue. Whether as a husband or wife, a son or daughter, a friend, or patient, we are all vulnerable. It is time to take a stand and to advocate for all those who are affected my this disease–a time to advocate for ourselves.

    • Ellen Potts says:

      Amen! Thanks for posting!

      Ellen Potts

      • Cissa says:

        Indeed, Bobby. I just found this interesting piece on the web: If blood coesolterhl levels fall too low, and blood sugar is chronically high, this delicate balance is upset, and the destruction of the brain cells begins to take the upper hand as oxidative stress increases.Because the affected brain lacks enough coesolterhl for rebuilding its neuronal cell walls, it substitutes beta-amyloid substances instead. This leads to the buildup of the amyloid plaques associated with Alzheimers disease. Urging a low saturated fat diet onto us all may be contributing to this disease by depriving our brains of the fats they need. We should be reducing our carbs and increasing our fats. Many people think that sugar levels play a significant role in brain disease .a kind of type 3 diabetes.

  2. caregiver says:

    Living in Colorado, I found this page by following a link from Google. Happy I did. Nice topic, and great page. Keep up the Wonderful Work.

  3. BIBI MONFAREDZADEH says:

    Where are we at with getting legislation passed on this disease?

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